Heather Lanier's daughter Fiona has Wolf-Hirschhorn syndrome, a genetic condition that results in developmental delays--but that doesn't make her tragic, angelic or any of the other stereotypes about kids like her. In this talk about the beautiful, complicated, joyful and hard journey of raising a rare girl, Lanier questions our assumptions about what makes a life "good" or "bad," challenging us to stop fixating on solutions for whatever we deem not normal, and instead to take life as it comes. Her memoir is forthcoming from Penguin Press.
Watch the TED talk, entitled "'Good' and 'Bad' are Incomplete Stories We Tell Ourselves" here.
Heather Lanier's RAISING A RARE GIRL, which chronicles the challenges and joys of parenting a daughter born with a rare genetic condition, has sold to Ginny Smith at Penguin Press in an exclusive submission.
The memoir will be based on her popular blog, Star in Her Eye, as well as an essay in Vela Magazine entitled "SuperBabies Don't Cry" which went viral and was hailed by Cheryl Strayed as "magnificent." Read it here.